1.9K reactions · 61 shares | May is EDS Awareness Month 煉 Let’s set the record straight: Ehlers-Danlos Syndrome doesn’t usually mean a shortened life expectancy. Misinformation online? We’ve seen the video, and we’ve got receipts. #EDSAwareness #FactsOverFear #MedicalMythBusters #ehlersdanlossyndrome | Dr. Betsy Grunch - Ladyspinedoc | Facebook

25K views · 627 reactions | For EDS awareness next month, I’ll be breaking down all of the “quirky things” we do that I’ve mentioned in previous videos. Explanation videos are posted, but be sure you’re on my email list so you don’t miss all of the emails coming that explain everything! | The Hypermobile DPT | Facebook

Are you near Central London on November 29? EDS awareness is coming to Picadilly Circus! Aurora and Suzette are a music duo known as TEM-PLE, who “believe that music has the power to bring awareness to underrepresented issues and inspire people to think about things differently.” Aurora also has Ehlers-Danlos syndrome (EDS), and TEM-PLE has curated an incredible awareness and music campaign for EDS and the community. On Wednesday, November 29, at 6:30 pm, TEM-PLE will show a five-minute screenin

8.4K views · 215 reactions | What is it like to live with vascular Ehlers-Danlos syndrome (vEDS)? This awareness video highlights some of the experiences of the community living with vEDS, the impact on their families, the importance of education and research, and hopes for the future. #REDS4VEDS | The Ehlers-Danlos Society | Facebook

"I am 43 years old, a retired Occupational Therapist, and a rare disease advocate. Multiple vascular complications have provided me with a lived experience of the potential pitfalls in the diagnosis and management of vascular Ehlers-Danlos syndrome (vEDS) complications. The condition is frequently misunderstood and underestimated, resulting in a very traumatic patient experience. However, the lack of understanding of the disease process leaves BOTH patients and clinicians vulnerable. I feel a re

1.4M views · 20K reactions | Toby loves showing his routines with Ehlers-Danlos syndrome  | Tyla | Facebook