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EB Research Partnership co-founder, Eddie Vedder, shares his perspective on the remarkable progress being made on our journey to cure EB. 🦋✨ To the brave, resilient, and incredible EB community, you inspire us every single day. To everyone who wants to get involved – now is this time! All donations made to the #WingsofChange campaign will be DOUBLED up to $250,000. Learn more and donate at https://give.ebresearch.org/eddievedder | EB Research Partnership
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You can read about all the projects EB Research Partnership funds and donate so EBRP can continue to fund more innovative, life-saving research at ebresearch.org/our-impact | EB Research Partnership | Facebook
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48 reactions · 21 shares | Meet Mary. She is so much more than EB. ❤曆 She is a rare human, and as Selena has said, we can all learn an incredible amount from Mary. To live in a world that is caring and inclusive we must promote understanding. If you want to learn more about EB and the work we're doing to find a cure, head to ebresearch.org | EB Research Partnership | Facebook
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