Understanding Dementia: A Caregiver's Merry Xmas Message

This video captures just over one month in the lives of families fighting Sanfilippo syndrome type B — a rare, terminal childhood disease. In less than 36 days, families and communities across the country raised $4.2 million by Thanksgiving, and met our $5.5 million goal by December 1, to pursue potential early access to a treatment many parents were never told existed. That milestone matters. But it is not the finish line. The process still in front of us — access decisions, timelines, regulato

Soha on Instagram: "Some stories aren’t told for sympathy, they’re told to give strength. Hina’s journey is not just one of resilience, but of generosity. By sharing her experience with cancer, she’s created space for so many women to feel seen, understood, and less afraid. In today’s episode of All About Her, with Hina Khan @realhinakhan and Dr. Sewanti Limaye @sewantilimaye we had a real conversation about cancer in women from the basics to the realities, from fear to facts, and from diagnosis

Gentle Warning to My Sisters by Sumaya Gabow