ALS Canada rallies around progress in research and a call for continued action this ALS Awareness Month

June highlights growing momentum in ALS research and the urgent need for sustained support and national recognitionTORONTO, ...
STAT

My stalled relay race to get access to ALS drugs in development

One night in November 2018, I fell while crossing a street in Subic Bay, a U.S. naval logistics station in The Philippines. My face whacked the asphalt. Lying in the path of oncoming traffic, I couldn ...
Seeking Alpha

Voyager Provides Update on SOD1 ALS Gene Therapy Program

- All other programs remain on track; IND filings expected in 2025 for GBA1 and FA programs - LEXINGTON, Mass., Feb. 11, 2025 (GLOBE NEWSWIRE) -- Voyager Therapeutics, Inc. (VYGR), a biotechnology ...
News Medical

Leading organizations announce research initiative to uncover why ALS affects high-performing populations

Answer ALS, in collaboration with ALS Therapy Development Institute (ALS TDI) and Augie's Quest, today announced plans to launch Champion Insights, an ambitious research initiative designed to uncover ...
FierceBiotech

Metagenomi axes ALS program after seeing Biogen and Ionis flounder

Metagenomi is editing its pipeline, choosing to seek a partner for a program Moderna dropped and axing its amyotrophic lateral sclerosis (ALS) activities in response to setbacks at a competitor. The ...
Nasdaq

Cytokinetics Announces Data From Its ALS Program Presented at the 32nd International Symposium on ALS/MND

SOUTH SAN FRANCISCO, Calif., Dec. 10, 2021 (GLOBE NEWSWIRE) -- Cytokinetics, Incorporated (Nasdaq: CYTK) today announced that new data were presented at the 32nd International Symposium on ALS/MND ...
Seeking Alpha

BrainStorm Announces New Survival Data from Expanded Access Program Cohort: Remarkably 90% of ALS Patients Survived Over 5 Years with NurOwn®

NEW YORK, June 16, 2025 /PRNewswire/ -- BrainStorm Cell Therapeutics Inc. (BCLI), a leading developer of adult stem cell therapies for neurodegenerative diseases, today announced new survival data ...
KSAT

$58 million given to ALS Association breaks record as highest single donation

SAN ANTONIO – “Hope is really all we can dream of when it comes to such a terrible disease. Hope is what keeps us looking to tomorrow, to the next day,” said ALS patient and advocate Juan Reyes. Reyes ...
Stars and Stripes

‘It’s a grave threat’: Veterans with ALS warn of delays for critical care and supplies

WASHINGTON — Veterans with the fatal disease ALS, along with their caregivers and advocates, warned lawmakers that the Department of Veterans Affairs delayed providing critical routine care, and the ...